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International Foundation for Emery-Dreifuss Muscular Dystrophy Inc.© All Rights Reserved.  Reproduction without permission prohibited. Web Design: marcy@emerydreifussmd.com

Many links are pending upload and or confirmation of medical data, please check back on 6/16/2014 when confirmation is expected.

Medical Professionals in the US treating EDMD or with knowledge of EDMD

Studies for EDMD research and treatment

Fundraising efforts

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Medical Alert Wallet Card

WELCOME!  This site is dedicated to the families and friends of people effected by Emery-Dreifuss Muscular Dystrophy.  We want to build a global community to promote supportive communication and education for families, as well as tools to communicate and educate the medical community.Find us on Facebook and connect with other families familiar with or living with EDMD.

Mission Statement