Hope is the golden thread woven into every experience of life”

EDMD Logo/copyright

The Foundation


Emery-Dreifuss Muscular Dystrophy

Our Mission

• 5K EDMD Trophy Run for Hope - to be announced

• 5 Mile Trophy Bike Race - to be announced

• $200.00 plate Formal Dinner Dance with Raffle - to be announced

• Dinner and Fashion, Hair & Make Up Runway Show - to be announced

Coming Soon

WELCOME!  I’m Larissa Velez, founder and Chairwoman of The Foundation for Emery-Dreifuss Muscular Dystrophy, USA.  This site is dedicated to the families and friends of people effected by Emery-Dreifuss Muscular Dystrophy.  We want to build a global community to promote supportive communication and education for families, as well as tools to communicate and educate the medical community.Find us on Facebook and connect with other families familiar with or living with EDMD.

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The Foundation for Emery-Dreifuss Muscular Dystrophy Inc.© All Rights Reserved.  Reproduction without permission prohibited. Web Design: marcy@emerydreifussmd.com